This site is not medical advice, seek advice from your doctor.
I am simply sharing what works for us on our journey.
TIP 1: Get an allergy panel done to eliminate possible allergies.
TIP 2: Observe as you begin to eliminate food items that you feel are causing a reaction.
TIP 3: Avoid products with fragrance. Including laundry detergent.
TIP 4: Follow your gut.
TIP 5: Avoid Food color dyes like Red 40 and Yellow 6.
TIP 6: Try natural salves and look into finding a Holistic Doctor if you feel unseen or unheard.
Having a set course of action, eliminating triggers, steady improvement and knowing what to do is the control I look for, as there is no known cure. You are doing great and I send you love.
Establishing a skincare routine is paramount. There are no days off when it comes to eczema.
We start the day with a nice moisturizing session, repeated in the afternoon and night, to ensure there are no opportunities for dryness to set in.
After moisturizing we are sure to wait to apply the clothing again. If we put them on too soon the moisture may be absorbed by the fabric of the clothing.
I personally recommend a double layer system with severe eczema, as that is what we do. First a lotion or a body butter and then we seal with a wax based ointment.
If the skin is severely dry and we need extra moisture, I add about a teaspoon of colloidal oatmeal to a spray bottle of water and spritz the skin, before the moisturizing session.
Nights can be one of the most stressful times, in my opinion, so it is very important to us that the bedtime routine is as protected as possible. They have more alone time to scratch and undo all of the progress they have made on their skin for the day.
I do a colloidal oatmeal bath with a handful of dead sea salt before bed (We do this every other night). We then follow up with the double layer system, applying the body butter when the skin is wet and then sealing with the ointment.
When it is not a bath night, we spritz the skin with a water and colloidal oatmeal mix and seal with our wax based ointment. We then focus on her clothing.
Sun sleeps with breathable tights with feet and a onesie. She used to have to sleep in fully covered gear but we have come so so far. She no longer goes for her arms in the night so we can leave them uncovered. Previously she wore an eczema jumper from Soothems, footie or slept in a wet wrap.
We want to keep her cool enough, as heat can invite a flare up.
We used to be up every 2 hours. Sun's skin would be so inflamed. The important thing for us was calming it down as quickly as we could. This is why I tried my hand at formulating our cold cream. Kept refrigerated it helps to calm the flare up by the coolness and the colloidal oatmeal content, without a bath.
We use a colloidal oatmeal or chamomile based product to calm the itch and flare in a reasonable amount of time, naturally. This way we can get back to resting. Sun now can sleep through the night without a session.
When the going gets tough, wet wrap therapy was our emergency life saver.
Wet wrap therapy was introduced through her doctor and is a layer of wet fabric underneath dry warm fabric. We lived using this for a while.
We simply wet tights and her long sleeve onesie, at times used wet gauze in certain areas, and then placed her in a warm footie. We would re-wet the wrap when it dried if needed around 1.5-2hrs later.
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